I don’t think healthy people every really get chronic illness.
I have a friend I know from when we were both 6. She is the only person living nearby and so she saw me go from walking through limping to wheelchair on a daily basis. I keep her updated on my health even tho we rarely hang out anymore.
She was gonna come over yesterday and I had to cancel. She asked if I can’t hang out later that day. When I said i won’t feel better later, that if I feel that bad in the morning later will only get worse she got annoyed and “joked” that I’m just finding excuses. And I was surprised, she knows all about me being disabled after all? So, a bit taken aback, I told her it’s a normal thing for me.
“But you got the diagnosis now, aren’t you better?? I thought you’ll get better now”
She was honestly surprised and it made me realize a thing. They don’t get it. They don’t get that getting diagnosed only equals benefits like welfare or parking spot for us, and sometimes better pain meds but that is just like pushing luck. That it’s a forever thing. That that one day we felt good a week ago was just a bright spot and doesn’t mean we won’t need our aids anymore, cause chronic illness is not linear and will make a great comeback in next four hours, and the next good day is planned on when we’re 70.
Cause when abled people are sick, they get better. And our illness is just an excuse for them. And when we say we will never get better they think we’re being dramatic and pessimistic.
And I don’t think they’ll ever get it, cause to get it you need to live it.
And I want my friends to stay healthy and not go through hell.
This is definitely okay to reblog and abled people are encouraged to reblog cause maybe it’ll help others understand
Hello it’s me Lexa and this post is relevant again as I just had the Legit Same Talk with someone and I exhausted my number of fucks to give
Oh my god I literally had this conversation with my mother an hour ago.
Mum: “So yeah, I was thinking that when I come down we could do visit an art gallery or a museum or something.”
Me: “I’ll have to see if I’m up for it, I’ve been going through a rough patch. I might not have the energy.”
Mum: “But you love art galleries.”
Me: “I know. What part of ‘it hurts to walk long distances now’ is hard for you though?”
I routinely have people well aware of my disabilities/chronic illness congratulate me on how I “seem to be doing so much better these days!” on a good pain/energy day and then basically try to stage an intervention a week later on a bad one. “You seem to be on a decline lately, I’m just concerned you’re not taking care of yourself!” And then a week later on a good day again congratulate me on how I really seem to have improved and must be making a real effort to keep on top of my health, with no irony or self-awareness whatsoever.
The narrative of “getting better” is so ingrained that healthy abled people will ignore massive amounts of cognitive dissonance to apply it where it makes absolutely no sense.
And this belief in “getting better” is actively harmful because that’s how we get shitty things like people having their benefits “reviewed” and taken away because it’s been ten years and they’re not going to the doctor “enough.” They don’t need to get constant treatment after they know what they have, but that doesn’t mean they’re magically cured or just “not trying”!!! It means they’re ill, they’re always going to be ill, and going to the doctor every week isn’t going to change that (not to mention it’s expensive af)!
I see this in my job much more frequently than I should (we help people fight benefit denials and occasionally get back benefits after these “reviews”). Sometimes it’s justified - the person went back to work - but more often, it’s not, it’s just that some worker somewhere decided that this person or that person should be all better by now, and that’s just not how chronic illness works, so ending this idea that chronically ill people will just get better would help put a stop to shit like that.
They cannot comprehend that we do not control our health. In their world, when people are sick it’s because they caught it from someone else, and if you stay sick it’s your fault for not taking care of yourself. They cannot fathom a world where you can
do everything right and still be sick.
“don’t let your disability define you! Fight! INspirEd! Taking back my life from Cancer!” This narrative is everywhere in Able culture. If you JUST tried harder you’d get better. THAT is what they live and believe.
Therefore to them if we are “still” sick or “Sick Again” it’s because WE did something wrong. They can’t comprehend a world where you can’t Earn health as a reward for performing purity, kale and yoga.
this is the stuff that got me taken off my ADD meds in the middle of my first real year of good grades because i “got better” and immediately tanked my GPA while i got berated for being “lazy” and “not trying hard enough,” and then eventually got me back on ADD meds two years later, in addition to meds and therapy for moderate-to-severe clinical depression and anxiety
ignoring somebody’s conditions Will Make Them Worse
showed this to my roommate and her only comment was “that was a whole feature-length film. i feel like i just watched a b-movie version of coraline” with a general miasma of despair about her face
Purchased this handmade grumpy rain frog plush from my friend @hollowedskin and he is soft and adorable. They sell a number of little handcrafted plushies on their Etsy store, each one unique, which you should check out if you’re into that sort of thing!
I wish rich people went back to keeping artists as pets. Like when you’re wealthy enough you pick a cool weirdo to do regular commissions for you, and if you really want to flex on your peers, you’ve got several.
And you visit them every once in a while like “hello, I’ve paid for your rent and your tools, have you worked on that commission giant oil painting of me getting sucked off by my political opponent, who is unfortunately still the mayor of this town, like I requested?”
And your favourite feral art person looks up - mouth full of gravel and completely surrounded by art-related trash like “no, but I designed a helicopter.”
And you’re like “that’s fucking lit, the mayor doesn’t have a helicopter. Please carry on as you have.”
i think we need to talk about understimulation in adhd more. because whether i like it or not the common person sees me and thinks. oh. ur doing things you like to avoid doing things you don’t like. and it’s really not as simple as that. because things that “i like” can be so subjective. sometimes when i try to do something “i like” i feel nothing. there is no joy, i’m not happy about this in any way, and it feels like such a chore just to try and make myself do it. often times procrastination in adhd isn’t even about being lazy and having fun doing things you enjoy. it’s your mind not letting you do anything. you can’t do the thing you’re putting off and putting it off makes you feel stupid but you can’t do it you just CAN’T. and it’s so frustrating and you end up just doing nothing in particular for hours and hours and you feel like you’re wasting your existence
